NB: I have removed the link to the article that sparked this post - as it is now showing up as page not found. I dont know why. Despite this the blog stands - I have thought for a long time that its time to get both illnesses properly classified.
In short the World Health Organisation classifies all known disorders and diseases. For a long time there has been a tussle between Research Psychiatrists and Research Scientists about the cause of both M.E and Fibromyalgia.
Are the illnesses really in our heads and we are just making it all up malingering and developing illness behaviours so people feel sorry for us in our depressive illness so convinced our we that our pain, fatigue and assorted neurological symptoms are real...as some notable and influential Research psychiatrists would have the world health community believe
Are the illnesses really physical in nature - both neurological and physical malfunctions of the central and peripheral nervous system. That due to misfiring signals to the brain create very real symptoms that are not imagined but are as real as as any pain, fatigue and neurological. as the Research scientists are discovering the more they look into it.
let me say it clearly I'm not "mad" im ill and now im very very angry
The new classifications is in draft and we have until 2017 to speak with one voice to make sure that the science is heard, we are heard and once and for all we dispel the myth that we are all delusional layabouts that we just need to get off our backsides.
I am not for one minute saying we dont need support, or that psychological help has no part. But It is NOT the root cause - It is NOT a mental or behavioural disorder.
What can we do:
1. Research - pull it all together fully referenced in one place, including bloggers links etc
3. share our stories - our truths
4. Galvanise the online community, our friends and loved ones to make a bloody big noise - that is coordinated and focused
5. leave a reply here if you are willing to help. Im just one scared angry voice - I cant do anything alone. Im not an academic, or even a very good writer. but surely if all the bloggers, academics, medics who believe in us and we make enough of a stink we might just finally break through and get what we deserve..
a true diagnosis and treatment that helps us manage these disabling illnesses - even if the article is not as bad as it could be - there will be another scare, and if we dont do it then one day people like Professor Fink will win his argument that its really Bodily Distress Disorder (BDO) and the research will dry up, the breakthroughs end and once again we will be treated as people who make this shit up
As another well known campaigns slogan said so powerfully - Alone we whisper together we shout..lets shout but use evidence, reason and our stories to do it. xx
Thanks to spoonydoc for her great supportive blog http://loopys-rollingwiththepunches.blogspot.co.uk/2014/02/fibro-and-cfs-mental-disorders-who-must.html